Doing everything we can to facilitate diagnoses of complex ​autonomic dysfunction

Quarter Arc

Who are We?

Maitetxu A.C. Foundation is a nonprofit organization born from the desire to do everything possible in the fight toward the correct and prompt diagnosis of dysautonomias, especially those presenting with complex autonomic dysfunction.

Smiling young diverse ladies showing hi sign while taking selfie on terrace

Seeking to support patients in the fight for their diagnosis and accompanying them in their treatment

Hand-in-hand. Couple love in forest.
doctors studying x-ray film

Working relentlessly to support continuing medical education of these disorders in the medical community.

Unsure Woman Shrugging

But, what is Dysautonomía?

Quarter Arc

A dysautonomia is any condition or dysfunction of the

Autonomic Nervous System (ANS)

Pulse & ​Blood


Stethoscope and Heart on a Cardio Diagram.

The ANS is the part of the Nervous System in charge of carrying out all the functions that the body performs autonomously and not consciously.


Temperature ​Regulation

Hands Shaping Heart on Belly
Close-up Of Thermometer On Sand


Et cetera...

Quarter Arc

It is crucial to understand that ​"dysautonomía" IS NOT a diagnosis per se.

"Dysautonomia" is an umbrella term that encompasses

ANY disorder or dysfunction of the ANS.

Meaning that "Names & Last Names" matter!

Precise diagnosis of which kind of dysautonomia, and if possible, its root cause, is essential since it dictates specific treatment and management, greatly impacting the quality of life.

More about Dysautonomias...

Geometry Category

They are classified into different syndromes or conditions according to their symptoms.

Confident Doctor and Couple Patient Sitting at the Table in Clinic Office. Family Doctor.

Treatment and prognosis depends on each individual case. Most cases have no cure.

Nurse Injecting Patient for Renal Dialysis Treatment

Patients' quality of life can be compared to those suffering from heart failure, COPD, or receiving dialysis.

25% of patients cannot work or attend school.

In most cases the underlying cause of the dysautonomia is not known.

Confused Woman on White Background
Businessman Standing With Shadow Of A Disables Man

In many cases, patients "don't look sick". But, since multiple body functions can be affected, dysautonomia is considered an INVISIBLE DISABILITY.

Smiling female patient in bed

Others can be completely disabling or even, in rare cases, fatal.

Some (most) dysautonomias are "benign" and can be controlled by habit/lifestyle changes. Medications are sometimes used.

doctor and patient

What are we up against?

Selective Focus Photography of Person Watching Watch

The average time for a patient to be diagnosed is 6 years.

Many Reminder Notes

Since multiple systems can be affected, patients are sometimes diagnosed with multiple independent diagnoses.

Group of pre-med students raise hands in class

ANS disorders are rarely included in medical curricula, and if they are, they are usually seen in as little as ONE class.

83% of patients, due to looking "healthy", are referred to receive only psychological/psychiatric care.

Although there is beginning to be some medical awareness, there is still a lot of work to be done in education, knowledge, and recognition of dysautonomias.

A Classroom Scene

In the United States, there are less than 100 doctors certified in ANS disorders and only 5 medical teaching centers that offer fellowships in these conditions.

Quarter Arc

Our Mission

Work for prompt, correct, precise, and specific diagnosis of dysautonomias, especially those presenting with complex autonomic dysfunction, and their comprehensive management to improve the quality of life of those who suffer from them.

Quarter Arc

Our Vision

Team Putting Their Hands Together

Create a solid Mexican platform for the diagnosis and treatment of Dysautonomias.

FACILITATING on table Facilitation secrets

To be great facilitators in the fight for prompt and accurate diagnosis of patients suffering from disorders of the autonomic nervous system.

Support and accompany patients in the control and comprehensive treatment of the different systemic complications they face due to these conditions.

Close up of Business Team with Hands on Top

Work tirelessly with the medical community to promote education, knowledge, and recognition of the different autonomic disorders.

Medical Team

Create a network of doctors who know these conditions in-depth, to facilitate their diagnosis and management.

Provide doctors of different specialties, through training, with techniques for the management, control, and treatment of the specific complications that the different dysautonomias may present.

doctors studying x-ray film

Our Story

Quarter Arc

Fundación Maitetxu A.C. was born from the struggle of our family member and friend, Maite Goya, to obtain an accurate diagnosis regarding her dysautonomia.

This fight lasted for almost 20 years until she was diagnosed with an extremely rare form of epilepsy, which is the cause of her autonomic dysfunction.

Throughout her diagnosis journey, Maite tirelessly searched for the necessary tools to live her life as "normal" as possible while fighting relentlessly to find her precise diagnosis, as well as the right doctors to achieve this.

The experiences we have lived with Maite inspired us to create this foundation, as well as to define its course and cause.



We know it's not a common name.

It is pronounced "My-teh-choo".

For Maite, family is fundamental. But especially her grandparents, Meche and Alberto (better known as Aitatxi to her grandchildren), have been key in supporting Maite's struggle; and, for her, it was of the utmost importance for the Foundation to honor them and continue their legacy.

They affectionately call Maite, Maitetxu.

Legal Constitution and ​Status


We were legally established on December 10, 2018, under the figure of Civil Association.

Fiscally, we are a non-profit legal entity.

We belong to the Federal Registry of Civil Society Organizations (RFOSC).

- CLUNI: FMA18121009N5N

We are currently working on obtaining the Certificate of Accreditation of Activities from the Commission for the Promotion of CSO Activities of the General Directorate for Welfare and Social Cohesion (formerly INDESOL).

This certificate will allow us to process the status of authorized donee.

But why did we choose to focus on continuing medical ​education and diagnosis?


Desperate to find Maite's diagnosis,

In 2018 we decided to attend the 6th Dysautonomia International Annual Conference.

And it turns out that there virtually was NO mention or talk of “dysautonomia” per se in the program.

The diagnosis that they had given us in 2012 did not exist as such.

Quarter Arc

The “why” of ​our objectives

In fact, in the books, ​the word ​“dysautonomia”, as ​such, doesn'treally ​appear either.....

Obtained from:

Biaggioni, I., Browning, K., Fink, G., Jordan, J., Low, P. A., & Paton, J. F. (Eds.). (2023). Primer on the Autonomic Nervous System (4th ed.). Academic Press.

When Maite received “dysautonomia” as a ​diagnosis

In 2012, in Mexico, almost no doctor knew the word “dysautonomia.”

Now, they begin to be aware of it, but they tell their patients:

“You have dysautonomia”

That, alone, is the diagnosis

Quarter Arc
Businessman in a Giant Maze

But “dysautonomia”, as such, is


And that is why so many patients DO NOT GET BETTER.

In addition to the fact that it is beginning to be used as a “black box” diagnosis

Quarter Arc

That is why our objectives ​and the guidelines of our ​care models are:

Back View of a Man Watching Papers
Male Lecturer Teaching Medical Students in University

Continuing Medical Education

Fight for and support patients in their diagnosis

Patient Care
Brushstroke Arrow Smooth Curve Down Small


Rectangle Shape Vector


National and international experts and strategic alliances

Brushstroke Arrow Smooth Curve Down Small
Rectangle Shape Vector

Promotion of education, knowledge, and recognition of the different autonomic disorders

Brushstroke Arrow Smooth Curve Down Small

Which will

allow us to

Rectangle Shape Vector


Diagnosis, Management, Control and Treatment of ANS disorders and the specific complications they may present

Rectangle Shape Vector


Rectangle Shape Vector

Correct Diagnosis ​& Treatment

Brushstroke Arrow Smooth Curve Down Small

That by referring

our patients will allow us to

meet our goal

Attention Model



Medical Team


Educational Worksheet Geometric Shapes

Free orientation where we evaluate

where we stand:

- Do you already have a diagnosis?

- Is it the final diagnosis?

- Do you need help with

a specific medical complication?

Brushstroke Arrow Rapid Curved Small
Educational Worksheet Geometric Shapes

If necessary, they are referred to a doctor(s) in the specialized network:

- For the correct diagnosis

- Treatment of specific complications

Person Icon
Brushstroke Arrow Rapid Small

Orientación sobre a qué

médico(s) de la red

referir para su diagnóstico

Brushstroke Arrow Rapid Curved Small

Walk-ins or

medical referrals

Educational Worksheet Geometric Shapes

Accompaniment and support are offered:

- In search of a diagnosis

- In living day to day with a chronic disease

- "Translation" of medical terms

- Resolution of doubts

- Tips for managing their dysautonomia

Doctor Holding Patient's Hands with Care Encouraging to Take Treatment
Group of people on peak mountain climbing helping team work , travel trekking success business concept
Brushstroke Arrow Rapid Curved Small
Rectangle Shape Vector
alms gradient icon


(more information below)

Human Hand Symbol
Brushstroke Arrow Rapid Curved Small
Rectangle Shape Vector


Do you do something, have experience, or work in something that you think can help us fulfill our mission?

Join our work by contributing your talents!

Brushstroke Arrow Rapid Small

Be part of

the Missión!

Rectangle Shape Vector
Man whispering icon

Spread the word


attend our events!

Quarter Arc

How to Help?

I’d like to help! ​(Donations)

Quarter Arc
Minimal bank service building with coins

For Bank Transfers ​& Deposits, please ​comtact us at:

Please contact us if...

Sticky note rectangle

If you are a physician and:

-You are interested in sharing your knowledge in autonomic disorders and helping us with our CME programs (webinars).

-You know a physician in Mexico that is knowledgeable in the subject and could be interested in being a part of our specialized network.

-Know of a physician in Mexico who could be interested in learning more about autonomic disorders.

Woman in White Coat Doctor and Stethoscope in Hand

Patient recovery
Sticky note rectangle

If you know of a patient that would:

-Want to understand your condition

-Needs help getting a diagnosis

-Needs help with a co-morbidity

-Is looking for support and accompaniment

Thoughtful African American woman, question mark
Sticky note rectangle

-If you have any questions regarding the foundation

-Want to donate, provide any feedback, or contribute with ideas and/or talents.


1) Boris, J. R. (2018). Postural orthostatic tachycardia syndrome in children and adolescents. Autonomic Neuroscience: Basic & Clinical, 215, 97–101.

2) Bryarly, M., Phillips, L. T., Fu, Q., Vernino, S., & Levine, B. D. (2019). Postural orthostatic tachycardia syndrome: JACC focus seminar. Journal of the American College of Cardiology, 73(10), 1207–1228.

3) Dysautonomia International. (28 Octubre 2018). 2018 Dysautonomia Awareness Month. 11 Diciembre 2018. Sitio web:

4) Gibbons, C. H., Bonyhay, I., Benson, A., Wang, N., & Freeman, R. (2013). Structural and functional small fiber abnormalities in the neuropathic postural tachycardia syndrome. PloS One, 8(12), e84716.

5) Kelly Freeman, MSM; David S. Goldstein, MD, PhD; Charles R. Thompson, MD. (2015). The Dysautonomia Project: Understanding Autonomic Nervous System Disorders for Physicians and Patients. Sarasota, FL, EUA: Bardolf & Company.

6) Shaw, B. H., Stiles, L. E., Bourne, K., Green, E. A., Shibao, C. A., Okamoto, L. E., Garland, E. M., Gamboa, A., Diedrich, A., Raj, V., Sheldon, R. S., Biaggioni, I., Robertson, D., & Raj, S. R. (2019). The face of postural tachycardia syndrome - insights from a large cross-sectional online community-based survey. Journal of Internal Medicine, 286(4), 438–448.